Hey. Thanks for your comment.

I’m sorry you’re going through all of this!

You were asking about allergy shots and – I have found a good pattern
(for me) of going for my shot every other week. If I keep to my
schedule well symptoms don’t crop up. Now, December I had some major
work crisis that kept me from getting the regular shot and I’m still
trying to get settled back down. That much said, my symptoms are
improving (January was rough though.)

It took months and they suggested that I might see improvements in
allergy symptoms for a couple years after starting shots.

Nasal congestion – yes. I’m not sure that it’s always the same as the
ear giving trouble… Somehow I don’t think so, but at the moment it
is… I also had a tendency to sleep on that side and suspected
gravity was part of the problem.

Water – at one point I tried lots of water (I typically don’t drink
much…) It didn’t seem to make a difference.

Low salt. I really tried this for around six months with logging my
food/etc. No improvement whatsoever. i gave up on it and pursued
other solutions (allergy shots.)

Tired – triggering attacks. I would say that stress is a big factor.
when it seems like I’m more overworked it seems more likely for an
attack to flare up. Although lately if I’m good at keeping up with
the allergy shots it keeps it from getting out of control.

riboflavinoids(?) – I’ve tried lemon bioflavinoids for a several month
stretch. No big impact. I’ve been at a point where I was taking so
many pills a day I decided to discontinue as I didn’t notice an
improvement.

I’ll say that a lot of the allergy medicines they prescribe seemed to
have no effect on me.

Good luck – I REALLY hope and pray that the allergy shots will make a
difference for you!

Hi I found your site today after trying to find how to control my meniere’s-like symptoms. I have fullness and hearing loss almost every day for the last year (I am 17 y/o) and have seen multiple ENTs, and finally found one who diagnosed me with “fluctuating hearing loss, appears to be hydropic.” Doing research online shows that I have cochlear hydrops, which is Menniere’s without vertigo (and hopefully I won’t develop vertigo.)

So far I have:

been utilizing a low sodium diet- does not seem to have any help what so ever. This week I want to try an extremely low diet to see what happens

taken diazide (diuretic) on and off, currently I have been on it since Feb. 1st. I don’t think it has done much to stop attacks of hearing loss/fullness but I believe they aren’t as severe.

tried predinisone (steroid) which seemed to work for 3 days before not working again.

gone to two separate allergists, tested positive for dust mites. First allergist gave me basic pill meds, and flonaze and did nothing. I also would like to mention that one of my nostrils (always changing) is ALWAYS blocked. No doctor has seen anything to prove this but I know it is related because what ever side is blocked is also the ear my fullness/hearing loss is in. The second allergist who I just recently saw said that what I have (the nasal congestion) is typical to dust mite allergy. She gave me antihistamine spray, and doesn’t seem to have an effect. I will soon begin allergy shots, and I hope, and boy do I mean hope, that this will be the one thing that helps me.

I have a few questions for you;
-do you have the same nasal congestion?
-does drinking water have any affects on you (I cannot find the right balance, right now it seems like if I don’t drink water all day my ears are fine. Which doesn’t make much sense since I am on diuretic)
-how much help did the allergy shots have on you?
-does being tired trigger attacks? The only times I haven’t experience a day with fullness/hearing loss is during long periods of rest, for example during winter break I felt very good, soon as school started guess what came back immediately.
-how does salt effect you? I can’t seem to fine correlation with myself.
-have you tried riboflavinoids?

Sorry if that was long, I really need something to look forward too.

Thanks, It’s been a rough week of Meniere’s attacks. (4 attacks in 7 days – one with full fledged vertigo – the others with just severe dizziness… (just… )) I got out of my allergy shot routine in December and am now paying for it I think.

Just found your site today and have been catching up on your posts. Thanks for taking the time to put your experience in writing! Hearing my own story from another is both comforting and a little disheartening all at the same time. I’m currently waiting to see a rheumatologist after my regular doc found high markers in my blood work. Already been down the ent, allergy test, menieres diagnosis etc. etc. anyway , thanks and I look forward to tracking your progress and hopefully you (or me) find some answers and an effective treatment!

I completely understand. These last couple of years with Rheumatoid Arthritis on top of the Meniere’s Disease… there have been so many days that I just haven’t felt like climbing out of bed.

It’s such a good story to pass along the idea to someone who doesn’t understand. The only other way I can describe the fatigue that I get is to remind people how the feel with the flu. Not the sick part, but the getting better. You think you’re getting better and go to do something and then realize that your just not quite up to it and have to go back and rest. I can’t tell you how many days I have had to go back and rest after just getting up, getting dressed and fixing breakfast.

I do hope that things are going better for you on most days.

Avery

I’ve seen this before, and every time I cry, and think it’s me…but it’s not.
With Meniere’s you never know when in the middle of the day, or any time, you may drop all of your spoons, and borrow from the next few days. You can’t even think about picking up the spoons for a few days.

Living with an extra spoon in my pocket so I’m prepared doesn’t work. I’m never prepared.

On good days, the spoon theory works for me…because I still can only do so much….but on attack days, I lose my spoons for days…that’s really hard for some people to understand.

wendy

It seems every time I’ve been on prednasone it’s been a
slightly different experience. The first time I had a clear
improvement from taking prednasone it was a 25mg dose shortly after
onset of symptoms (then stepping down to 20, 15, 10, 5 consecutive
days if I recall correctly.)

These days I’m on prednasone low dose (5mg daily) for rheumatoid
arthritis and have not been having too many vertigo issues. I’ve also
been getting allergy shots which seemed to have helped my trigger.

One of the keys to being able to manage it is to try to figure out
what triggers attacks for you. Allergies/diet/etc….

Good luck to you and your husband, I know it can be difficult finding
answers and will keep you in my thoughts and prayers…

Avery

My husband may have this….has been on Prednisone for a week, has one more week to go until he sees the Dr again. He doesn’t think it’s working, but i wonder if it’s even been long enough. When/If did you notice a difference after taking it?

Thanks, Erica

Hi, my mom got Meniere’s disease too. in Chinese there is a way to reduce the symptom but it depends on different person.but really some of them think it is useful. there is a chinese medicine called “独活”, you can find it through chinese friend. use it 60g to boil 6 eggs. when eggs are ripe peel them and boil other 15min. 2 eggs once, once a day. 3 days a period of treatment. 2 period will be effect.but it not fit for long time to eat. wish this will help you.
PS: the water of boiling egg can’t be ate

Thanks for stopping by – I think you’re right – autoimmune issues come in clusters (I wonder if they’ll flare at the same times?)

I’ve decided that instead of lactose intolerant I was fat intolerant. (Trying 2% milk tonight – hopefully that’s not too much….. unfortunately we were out of the no fat milk…)