My Meniere’s Diagnosis

Another Spin, More Joint Pain and Possibly Rheumatoid Arthritis

What a fun winter it’s been! (Slight sarcasm.) I enjoy snow and we’ve had it in spades this year in a way we haven’t seen for many years. I haven’t really been able to enjoy it much though for the joint aches and pains which seem to be worse in the cold. After my last post I had another vertigo attack on January 6th. How do I remember the date? It’s funny – I usually have a hard time remembering what I had for lunch yesterday but I can recall the dates of my attacks for quite some time. I remember it was a Wednesday and I had to cancel the afternoon portion of my schedule to get to the house and crash. Thursday was a wash as well. I started a round of prednasone that day as well. My joint aches seemed better over that following weekend. Which unfortunately has made me suspect that this may be Rheumatoid Arthritis coming on.

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Back from the Allergist – New Prescriptions to try to escape the Benedryl fog

I don’t know how else to put it, but the benedryl fog. The last month or 2 benedryl has helped to keep me from experiencing the worse stuffiness/tinnitus/spinning, but it’s making me feel like a zombie. I take a full dosage in the evening around bed time, but several days I have also had to take a half dose during the day. I’ve been taking one in the morning and if necessary (more crackling/stuffiness) then one in the late afternoon. That along with astelin and I feel like I’m just a fraction of myself. I don’t have energy or spark to get out and do anything. I spin my wheels at the work that I start, I feel like I’m thinking in oatmeal or molasses. So, today the question was what else can I try to keep the stuffy head stuffy ear/ear pressure away while I’m continuing with the allergy shots.

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Dizzies not quite gone

We had taken a short weekend trip when I had to cash in that Prednisone prescription. One night stay in a hotel just as a mid February get-away. We had to cut on the air conditioner that night and the next morning as I was loading the car things started spinning. Not full blown vertigo (spinning vortex of death as I’ve started to think of it), but on my own classification scale it was heavy dizziness. I took a Xanax and we made it back into town. I got the prednisone prescription filled and took it to the letter.

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Ear Nose and Throat Doctor (ENT)

So, by the time I was at my ENT appointment I was still having the pressure and roaring in my ear (always the right ear.) I was still off balance and dizzy. Especially after car rides. It was hard to watch motion. (Sitting in a lobby facing the street was almost torturous.) I went through several tests at the ENT including a hearing test and was Diagnosed with Meniere’s Disease. He said that the hearing loss matched the classic “loss curve” for Meniere’s and he prescribed my with Alprazolam (Xanax) and also wrote a prescription for a diuretic that I would use daily.

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The allergist

I then went to the allergist as I had been referred and discovered that I was allergic to dust mites and a mold (aspergyllum…) They started treating me for the more severe reaction, dust mites and couldn’t really say that would solve my dizziness/vertigo, but diagnosed me with Eustachian tube dysfunction as a likely cause for all that. My shots began and I found out in the early phase of “once per week” shots I could come in as often as I like as long as I left one day between shots.

I was eager to get things going (and to get as much as I could on the 2007 year health insurance as we had already met our $5200 deductible.)

So from October through late December I got allergy shots 2 to 3 times each week. I managed to get in Monday Wednesday Friday shots many weeks. Through all this time I was feeling miserable. Fatigue, roaring/pressurized ear/constant mild dizziness and off-balance.

So, I called the doctors office again and asked for a referral to an Ear Nose and Throat doctor. I just wanted to have another opinion on getting my balance back. (The worst was a car ride Thanksgiving weekend. I felt like was still riding in the car a week after I got back.)

So I got a referral to an ENT (Ear Nose and Throat Doctor.)

Time to find out What’s Going On

After my second vertigo attack I knew I had to find out what was going on. I was now terrified of that coming back. It haunted my dreams. I bought a pill carrier for my keychain and put the Meclizine in there. I read for hours online and found a description of this disorder called Meniere’s Disease. It said that the main symptoms were pressure or fullness in one or both ears, loss of hearing in one or both ears, tinnitus or roaring in one or both ears, dizziness and occasional bouts of severe vertigo. My jaw was on the floor as I read peoples descriptions of their experiences in the forum at the menieres.org forum. I found people there describing what I had experienced and had not yet found a WAY to describe.

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